My vet BIL was diagnosed with ALS and he has been declining RAPIDLY. The VA is dreadfully slow, and they literally can't keep pace. My wife and I are having to take care of him 5 days a week since he can barely get around with a walker. He is "eligible" for alot of care, but the process to get access is so slow that he outpaces everything they try and do. It is truly pathetic. So far:
Promises to help, then no return calls
Broken appointments from contractors with no call
Wait weeks to months to get appointments to see Dr's
3 Separate evaluations for 3 different services
Each evaluation takes weeks to schedule, then weeks to get the reports entered, then weeks to fulfill, then he has declined beyond that need by the time they are ready to fulfill the service.
He will be in hospice by the time they get a few hours of home health care approved.
Call your congressman. He will be dead before they help him if you dont. Cases like his need some personal attention. I wish him the best but damn. ALS is a ****er.